My Story - Caroline Craven, theGirlwithMS

Taking Action on MS Pittsburgh!

Here's an AWESOME Memory!  

With so many ways to Take Action on MS I feel blessed that this past weekend was spent with about 100 fellow MSers in Pittsburgh, Pennsylvania for Genzyme's Take action on MS campaign with Madeleine Stowe. While Madeleine does not have MS, her father did. And boy does she have a lot of good stuff to share with us all.

Knowing that I don't do that well in the heat, I was a bit nervous flying into Pittsburgh with A weather report of 91F and raining. As summer is approaching I was nervous. The MS was starting to creep up on me. I could feel it, time to take action. The week prior to traveling consisted of lots of water and good quality food and some tricks to distress the body. One of my favorite tricks iS an elixir from Orchard Flats Juicery in my home town of La Canada. The one I took was for stress and included ginger, turmeric, B12, lemon and celery. These are amazing! I took two the day before I flew out and the wave of calm over my body felt like a comforting, cooling blanket.

The week prior to flying was a busy one. On top of working with my marketing clients there was much to do for the event this past Saturday. Wardrobe called for some blue shirts so I did a little shopping. Rocked a total deal at TJMaxx when I found a Vince shirt in the color of my eyes. Clothes cleaned, hair and nails done, I was ready for the flight and the stage.
And an early flight it was to be! 7am from local airport, BURbank. Only twenty minutes door to door. Not bad. The big black car picked me up and I was on my way with plenty of clothing options to keep me looking good.
After an easy flight, I met up with the team at Vallozzis restaurant in downtown Pittsburgh. Delish! Starting with about five appetizers followed by an amazing dinner of homemade pappardelle and suckling pig, we were feeling fat and happy. Time to head back to the hotel and get some shut eye. Saturday to be a long day!
Waking in just enough time to doll myself up I left for the event. Time to take action on MS!
I checked out my set and all looked good. I was ready to go!


As the doors opened in cime about 100 folks wither with MS or caretakers of this with it. This is my group! As they settled in I handed out my cheat sheet on managing stress with MS. I love this sheet of tips and tricks and wish I had it fourteen years ago when I was diagnosed. Not a day goes by that I don't use something from this sheet:



There's so much to learn at these events. From managing stress to exercise to emotional issues. And then we all sit down for a lovely lunch and meet Ms Madeleine Stowe and hear about her experiences as a child with a father with MS in a time when they knew nothing about the illness. Her story is a good one. And she's a doll. A very nice, supportive person. Just who we need and want to help us build awareness for the MS community.

So how are you taking action on MS?








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