Doctors should be here to help, not stress

As those who have been following know, I've had some issues this past year with my neurologist. My lovely doctor of 10 years retired. The one who saw me at my worst. The one who diagnosed me. For ten years we worked on finding ways to thrive with my Ms and not suffer. We used nutrition, yoga, meditation, and more. We reduced stress from my life. It became a daily part of my life not much different than a diabetes managing their insulin. Managing the MS battery takes effort. The result: MS symptoms waning. So shouldn't this be a good thing?

I was referred to a neurologist upon her retirement. I attended her for three years but was getting frustrated at her inability to answer questions or to help me. She referred me to a neuromuscular specialist in her office and mind you, this was just last summer, I was told that their office didn't have my medical records from my diagnosing numerologist. Never could find them. So, this doctor had been treating me blindly for three years. No wonder she didn't know anything!

So another round of tests and MRIs to replace the ones that were lost and then lo and behold, my records were found! As soon as I went to yet another new neurologist thinking I would get some answers, they "found my records". It took two letters, at least six phone calls and two months for those records to make it to my house upon which I sent a copy to the new neurologist. This was twelve years of my history and I don't think he even read it. He reviewed a few charts at my last visit, laughed at me when I asked for my regular jury summons release and basically scooted me out the door in twenty minutes. With NO answers just more questions. He is not convinced its MS because I don't present as physically as others? Wtf? I look good, been taking care of myself, therefore I no longer am ill? What about my daily issues? Cognitive thinking, pain, fatigue, balance, vision?

I am so stressed by all of this. On top of it all he put down on my records that he thinks I'm bi-polar and have mental issues. Well, who the heck doesn't Have some mental issues with MS? It's an emotional roller coaster. Do these doctors know anything about MS? Who certifies these quacks and why do they even take patients if all they're going to do is run tests and laugh at you. I've never been so humiliated in my life. Between his visit and reading his notes I received yesterdefay, well, yes, today I may be bi polar! Crazy, mad, sad and depressed all at once. Funny thing is I felt fine before starting with this doctor. Here I thought he was going to be the answer. But FAIL!

Luckily I have a great Plan B. I got approval to see Dr. Weiner at USC and then I'll be joining a doctor down there that focuses on multiple sclerosis. Enough of these wack jobs.its just a matter of scheduling. At least it some peace of mind.

I have spent well over $2000 this year on doctor visits, MRIs and tests. Were they necessary? If the doctors had my medical history would they have needed to run all of these again?

Bottomline, good doctors should not be allowed to retire.

 

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